The past week
The past week has been stressful, but God continues to bless us in so many ways. Ellie felt her GI Dr wasn’t hearing her ,and so we were going to try and find a new one. She stopped her TPN because the formulation was making her so sick and miserable. In the meantime she was forcing herself to eat and drink, which of course, causes her a lot of pain. I spent many days last week going back and forth with doctors and nurses trying to figure this all out. I have a very demanding job as it is , and then I’d spend my lunch break trying to advocate for Ellie. We were not too successful in finding a new GI Dr because even though shes so close to turning 18 (May 2) , she has to stay with a pediatric Dr. If we stopped with our current GI, he had already put in orders for her PICC line to be removed. For her to see a new doctor and get a new line , this would’ve been a week in the hospital which I just can’t put her through right now. We weighed the pros...
